@shellylynn123 , thanks for sharing your experiences of life with D/L, like you said ours are similar. I think my fear/anxiety of recurrence is a perfectly rational emotion given the negative impact on my life a bleed causes. As yet I haven't sought professional counselling. I try and focus on how fortunate I am to receive the care that keeps me alive when the bleed occurs, and the resource available to find the source - post bleed. I am also mindful ( in the U.K.) the DBE procedure is used for patients with cancer, which thankfully I don't have. I try and keep as fit a possible so that when/if I present with another episode my heart is strong, and that I don't develop comorbidities. Causation - congenital or acquired ? I don't know, I am 55 YO, stopped smoking (20) years ago, stopped alcohol 2023. Pescatarian diet since 2018 but now eat meat to counter anemia. always have run/swim/cycle, and continue to do when HB levels allow. Does stress play a part ? The consultants that I have met are unable to give me the answers, and unable to give any advice on avoiding recurrence apart from 'live healthy lifestyle' I am due to see consultant about medication which may reduce severity/episodes, has your health team suggested medication? I hope you have a good day today, and enjoy the weekend. ATB.