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← Return to Dieulafoy’s lesion
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Digestive Health | Last Active: 5 hours ago | Replies (26)
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@gerardmartin when I was reading your post I literally thought this was my post. Everything you are going through and went through is spot on what I’m going through. I’m so scared everyday that it’s going to happen. Everyday I’m so thankful when I can sleep in my own bed and not a hospital bed. People don’t understand what a D/L is. It’s at the point when it happens I faint. So I have to wear a diaper in the hospital. Then when the blood comes out it’s so scary. I feel like I’m gonna bleed out. Thank you for replying to us. It sucks for us but thankful to not be alone. I’ve been wanting to find a group for a long time. Do they know what caused yours?
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@shellylynn123 , thanks for sharing your experiences of life with D/L, like you said ours are similar. I think my fear/anxiety of recurrence is a perfectly rational emotion given the negative impact on my life a bleed causes. As yet I haven't sought professional counselling. I try and focus on how fortunate I am to receive the care that keeps me alive when the bleed occurs, and the resource available to find the source - post bleed. I am also mindful ( in the U.K.) the DBE procedure is used for patients with cancer, which thankfully I don't have. I try and keep as fit a possible so that when/if I present with another episode my heart is strong, and that I don't develop comorbidities. Causation - congenital or acquired ? I don't know, I am 55 YO, stopped smoking (20) years ago, stopped alcohol 2023. Pescatarian diet since 2018 but now eat meat to counter anemia. always have run/swim/cycle, and continue to do when HB levels allow. Does stress play a part ? The consultants that I have met are unable to give me the answers, and unable to give any advice on avoiding recurrence apart from 'live healthy lifestyle' I am due to see consultant about medication which may reduce severity/episodes, has your health team suggested medication? I hope you have a good day today, and enjoy the weekend. ATB.