@sophie46 I changed doctors to get the Dilaudid I guess a lot of these providers think pain, is pain & it doesn't matter. I've been to several pain specialists over these years. My opinion of pain doctors, isn't that good. I think it's a big money making rip off ( most of the time) My caregiver goes with me & has been timing how long my visits were. None went over 5 minutes & most of the time, 3 to 4 minutes & out the door! What other type of specialist could get away with less than 5 minutes a visit? A lot of pain management places, are just mills & rarely are willing to go to bat for their clients. I told my last nurse practioner that Arachnoiditis pain, is not just pain. it's agonizing. She acted like she never heard me. I went into my new doc & she immediately told me i must be suffering greatly & asked me, what i wanted? I switched docs right away. I'm tired of the BS ! I'm still suffering, but at least i can get off my bed for an hour or two, once in awhile

@sophie46 I have gotten all mixed up with emails etc I am now on Dilaudid pills 2mg 1 pill every 4 hours I hate to say this, but the Dilaudid doesn't work on 90% of my nerve pain. I can't believe it. I've been writhing in horrific nerve pain, bilateral, from groin down both legs & feet and every toe. I even took them every 3 hours for awhile. I give up. None of the nerve medications work either. I took Neurontin in escalating doses & became close to comatose. I would sit at lunch with my friends & couldn't follow the simplest of conversations etc. Took lyrica too, with severe problems. What the hell?? To say that i am frustrated, would be an understatement. The neuropathic pain i have is horrific. I can't get out of bed when it attacks. I give up Arachnoiditis is ridiculous...never know when i will be totally non functional. U can't even get an appointment with any neuro for 6 months around here. Last time (7 years ago) i had all the DX tests & neurologist said i had polyneuropathy, peripheral neuropathy & basically told me my nerves were a wreck ( the he left the room) Things are much worse now & i don't even know how to describe what happens...my legs jerk, fly thru the air & do some excruciating stuff. Sorry for being so negative, but my life sucks, big time, im broke, frequently in agony etc... I wonder what i've done to deserve all this. The trial of the pump was iffy, as most of my pain is in my legs & arms. I really don't have too much back pain. but i would prefer it, to this horrible frequent nerve pain. I can't go to Mayo, cuz i medicare & Medicaid & can't work, etc