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Has anyone developed MCAS since Covid?
Post-COVID Recovery & COVID-19 | Last Active: 2 hours ago | Replies (12)Comment receiving replies
@covidstinks2023 Thank you so much for taking the time and sharing ideas. Unfortunately I have already spent a fair amount of money seeing naturopaths and nothing they have offered has helped. I saw a TCM practitioner and she had me stop eating salads and anything cold which really helped a lot with my energy, but it's been 3 years. (I remain mostly 100% devoted to her ideas and although it's helped, I am no where even close to better). I am very very limited in what I can eat without creating absolute misery in my body which includes inflammation that creates both pain (pelvis and lower back) and fatigue that makes it impossible to function. This started after the first covid infection as daily headaches and fatigue. That lasted 2 months, everyday I headache at around 4PM. I could count on one hand the # of headaches I'd had in my life prior to that. I think it is long covid because it ruined my already struggling digestive system. I've been working with an RD for 2+ years and she believes its MCAS brought on by Covid. It may have also been the shots.. because once i got the last booster, my fatigue and GI symptoms exploded. I am going to contact a local clinic.. there is one nearby. THANK you again. So much.
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@jgk177 I am sorry and empathize with what you shared. I have had this "virus" in my body for almost 4 years now. I believe it to be an autoimmune disease all it's own. Inflammation is at the heart of this. These are all my opinions from reading others' symptoms, my own symptoms and some of the research that has occurred. I have found that I can only drink water, sugar, and salt affect how I feel the next day. Fatigue, brain fog, post-exertion malaise, joint pain and other symptoms are things I go through. I never know how I will feel when I wake in the morning. My doctor has helped treat some of the symptoms. At first, in 2022, I had a positive ANA titer, RA, reactivation of Epstein Barr Virus, Folate was off the chart and yet my B12 was okay. I was told I had RA, which was not true as I have subsequently had labs over the last several years. My ANA is not flagged, no RA (although it feels like it some days) my folate is back to normal, B12 is okay and yet I am still having symptoms that inhibit my activities. It is brutal and yet, there is no one that seems to know what to do yet. At one point, I had GI issues, in fact it seems that Long COVID runs through so many symptoms from other autoimmune diseases. I did not get the vaccines due to fear and it turns out that some people that got the vaccines have bad effects, similar to what you have mentioned. If you get good or helpful information from your local clinic, please share here. Thank you for sharing.