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Post Robotic Prostate Removal: My Husband

Prostate Cancer | Last Active: 1 day ago | Replies (16)

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Wonderful news about your daughter! Of course, hope all stays well.

I was diagnosed at age 68 with G8. Unfortunately, I had seminal vesicle invasion and ultimately very limited metastatic disease (termed oligo metastatic-3 or less metastatic lesions). I was treated aggressively at Johns Hopkins and Emory 3-4 years ago and I am doing well. The treatment options available today are effective and increasing yearly.

Although it is hard to be diagnosed with any type of cancer it sounds as like your husband is in a good place. Reasonably favorable G score, no extensive local spread, node negative., no known mets. A lot to be thankful for. I would assume your physician will discuss the option of prophylactic radiation therapy with / without short term ADT therapy. If the PSA is undetectable and remains that way he might avoid this treatment.

I am not trying to get too personal regarding your husband's situation but there are a few issues that were not discussed in detail with me and I wanted to briefly share:

Incontinence. Virtually all men experience some incontinence, at least initially. Most regain full continence, especially those younger. If your husband is experiencing this problem my urologist suggested a book which I found invaluable in regaining continence- "Life after Prostatectomy ..." by Vanita Gaglani. Wonderful, well written book by very experienced pelvic floor PT. Available on Amazon. Spoiler: regaining continence involves a lot more than just kegels.

Erectile dysfunction. Very personal. It became an issue with me and my marriage. Not talked about much. If a man becomes impotent post surgery there are steps that can be taken to ameliorate the side effects. Too much to go into. Glad to elaborate if requested / needed. A website that discusses this issue in detail (actual men going through various problems related to ED ) is Franktalk.org

Good luck to you and your husband (daughter too)!

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Replies to "Wonderful news about your daughter! Of course, hope all stays well. I was diagnosed at age..."

@retireddoc Thank you. he is a little over 3 weeks post op. He has minor stress leaks, so that's pretty good from what I hear. At this point they just put him on Cealis 5 mg I believe and a challange dose 20 mg on day 7. Just did the day 7 dose. I appreciate your suggestion and will absolutely pass it on to him. I suppose time will tell...Thank you.