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Profile picture for Susan F, Volunteer Mentor @susanf8

@jadarose05 welcome to Connect and I'm so sorry to hear your husband is having so much trouble.

I have had high output with my ileostomy, but I don't think it was anything as high as your husband's. Mostly I have high output with food bourn illness these days.

What types of food is he eating? I know he's already taking metamucil but other soluble fibers helped me, especially in the beginning. These are "thickening" foods like bananas, pastas, applesauce, peanut butter, and breads. I also stay away from fruit juices, and drink Gatorade diluted to about 1/3 strength (full strength Gatorade is much too sugary). Are you keeping a food diary?

Is he lactose intolerant? Is he eating anything with artificial sweetener in it? I'm guessing not but sucralose will give me a very high output.

I personally don't find that small meals help, I typically will eat three meals a day. For me, when I eat my gut gets active and I have more output. If I eat more often, it's more active.

Has your medical team considered giving him TPN and letting his gut rest for while? I'm not sure what caused his emergency surgery, but does he have bowel disease?

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Replies to "@jadarose05 welcome to Connect and I'm so sorry to hear your husband is having so much..."

@susanf8
I am from the UK and therefore unfamiliar with the medicines prescribed for your husband except Loperamide so I cannot talk about the efficacy of his medication. I have a high output stoma. All liquids zoom straight through my small intestines, especially coffee. The output to the stoma is of course directly related to the amount eaten and drunk. In addition, the type of food eaten also has a big impact. In my experience and research, high fiber foods which are healthy for "normal" digestive systems can wreak havoc for some one with a stoma. For example, leafy greens including salad are a no go for me. Not only are they indigestible in the small intestine, there is absolutely no nutritional benefit derived. According to advice I have received, it costs more energy to process leafy greens for ostomates than the nutrition provided. To derive the benefits of leafy greens, look into broccoli sprout supplement providing sulforaphane. In my experience several smaller meals do make sense and loperimide alone (just one tablet a day in my case prescribed while in hospital did actually help and prevent sodium loss) did help. Timing and combining are important. Avoid drinking large amounts of fluid in one go - this is difficult in practice I know - but once the fluid leaves the stomach then it is full speed to the stoma. There is nothing to stop it just flowing through. Also, there are natural thickeners such as banana and bread. These definitely slow down transit but obviously do not eliminate waste eventually. I also suggest your husband gets his kidney function checked out as well. All the very best.