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Intrathecal Pain Pump

Chronic Pain | Last Active: 1 day ago | Replies (205)

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Profile picture for alexandercrps @alexandercrps

@heisenberg34 I also have 6 boluses preprogrammed by my doc at specific times where my pain normally spikes. It is hard to pinpoint exactly how much the pump helps but if I were to put a number on it I would say ca 20-25% relief plus minus? I have an extreme case of crps 2 after I crushed my heel bone in a 16 feet fall from a ladder. My brain replays this crushing injury every day, every morning it feels like my foot is crushed. I think, or I know, I would be bedridden most of the time without my meds and my implants, who all work together in concert to keep this crps beast at bay. But the pump was never able to help me cut down on my orals, in fact I know I need as many layers of relief I can find, so the pump, my abbbott scs and my orals all help get me out of bed. I am rarely under a 7 but I can go as low as 5 on the scale on a good day. Having said all that, two years ago I was barely ambulant and was in a wheel chair. Today I walk almost like a normal person, of course I walk with a lot of pain, but it has given me a new life, where I now can drive myself to appointments and I can give my dog a walk most days. I know I wouldn’t be able to do any of that without the pump, the stim and my orals meds which all help me move around more than I ever could before. I just think it is a dam ahame you get no relief, I am almost convinced it is a wrong placement of the carheter. Which meds do you use in your pump?

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Replies to "@heisenberg34 I also have 6 boluses preprogrammed by my doc at specific times where my pain..."

@alexandercrps Ouch!! 16 foot fall. Man, that' terrible. My brother-in-law fell through the rungs of an old, wooden ladder about five years ago. He had to get a metal plate implanted in hid foot. He still has pain, but not to the extant that you have.
I am taking gabapentin, tramadol and baclofen for the pain, although I'm not sure that any of them are really helping. I have just started taking CBD/THC gummies to help me sleep. They really help. I have had the placement of the catheter checked three times. Always says it's in the right spot. Who knows for sure?
Thanks for your responses. Much appreciated.