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Polymyalgia Rheumatica (PMR) | Last Active: 9 hours ago | Replies (19)
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@ess77 Elizabeth…..I feel your pain…….etc. Pls know You are not alone on this emotional roller coaster.
My experience is, pool exercises are least impactful, assuming you can climb the stairs (was my initial problem). Tylenol for Arthritis was a huge help and ok to take with Prednisone.
Lastly, I love my biologic Kevzara…..note: it can take up to 3 months to kick in. I was able to get off prednisone.
Good luck, we are all with you
Replies to "@ess77 Elizabeth…..I feel your pain…….etc. Pls know You are not alone on this emotional roller coaster...."
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@tweetypie13 and everyone here, thank you for sharing your experience with this terrible disease, it is so helpful to hear of othered experiences. Just to know I’m not crazy, the wild swings of symptoms I’ve experienced over the last year. Thanks for sharing also your experience with Kevzara, as I’m going to start on that next week when I see my rheumatologist.
I’ve been taking a low dose of methyl prednisone, 8 mg. Daily. And the dr. Added methotrexate 17.5mg once a week, but I’ve not noticed any improvement.
My problem is I have osteopenia, so the steroids caused me to have a bilateral fracture of my sacrum, which took some weeks to discover the cause of my terrible pain. I’ve never been able to have a high enough dose of steroids to eliminate totally the pain in my hips and shoulders.
Except in the beginning, they stopped the pain pretty quickly, until the fracture.
Does anyone else here have issues with osteopenia/osteoporosis?
How do you cope with this and the disease?
If the Kevzara doesn’t stop the pain (I’m using a walker, unable to carry my weight, the pain is so great unless I’m reclining in bed), i don’t know what to do next.
Many thanks to all of you for your shared experiences.