I had metastatic thyroid cancer at 16. Was inpatient for two weeks, remember having several tests/procedures before first surgery. Opened me up knew it was cancer and closed me up. Then more tests before he went in a second time to remove my thyroid and some lymph nodes. The following year I had my first high dose inpatient radioactive iodine treatment. Had a total of 3 annual inpatient radiation treatments before being cancer free. Twenty years later I was diagnosed with a recurrence. Never realized just how much radiation I was given until a fourth inpatient radioactive iodine treatment was necessary. At this point I’m at the maximum radioactive iodine limit before becoming high risk for bladder cancer and/or leukemia. I’m assuming they blasted me with radiation due to my age. The fourth treatment was successful and have been cancer free since 2000. I currently have a string of lymph nodes in my neck that have the appearance of cancer. After several negative neck biopsies my Endocrinologist just orders an annual neck U/S to monitor them for changes. So far so good they haven’t had any significant changes.

I do wonder if my osteoporosis is related to taking Synthroid for 47 years. My current dosage is 200mg one daily Mon-Sat, two on Sun. Makes me very nervous because my understanding is that it’s a substantial dose even for a patient without a thyroid. Would love feedback if anyone has more information regarding this!

Looking forward to meeting the people in the group! Hope everyone has a wonderful holiday and stay safe!
Laurie