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Profile picture for loiswhitfield @loiswhitfield

@harleytiger
I keep second guessing myself. Every little pain or feeling I get seems like the cancer has come back. I have appt with my oncologist surgeon on Friday, July 3. She wants to see me and maybe will schedule a MRI sooner than August. Wishing you the best outcome and praying things go well for you. Everything is still so new to me. Just found out I was stage 4 with squamous cell carcinoma on the parotid gland in August 2025.

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Replies to "@harleytiger I keep second guessing myself. Every little pain or feeling I get seems like the..."

@loiswhitfield The issue in your case is that you're stage 4. I was stage 1. I had surgery and 25 rounds radiation. I don't need to explain to you the difference between 1 and 4? I would be curious if your parotid gland is the primary source or not? I'm sure at this point your doctors have determined the type of squamous cell cancer you have? I'm no MD, but I would be surprised if your doctors don't strongly suggest both radiation and chemo therapy? Just know there are two radiation machines photon and proton. I didn't know that. I had Photon, but I wish I would've known about Proton. If you do choose radiation, ask for a lower dose if possible? I have read that sometimes lower doses are just as effective, but do your own research and ask a lot of questions. Radiation is by far and away the worst thing I've experienced but I'm not a year out yet. I am getting better. I wish I had all my tastes back and saliva, but I don't. I'm alive though.