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Does PMR go away permanently?

Polymyalgia Rheumatica (PMR) | Last Active: 9 hours ago | Replies (19)

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Profile picture for ess77 - Elizabeth @ess77

@scpartain and all... Yep! That's my finding as well. Not that I ever in the last couple decades did power walking or climbing the crazy football stadium steps... That's a great exercise for you perhaps, but it's been years since I did anything like that. I played a good tennis game in my 20s-30s, but Sarcoid hit at 40 and Osteroporsis at 35, so I stopped my fun goodies like tennis long ago. The therapy pool is a great way to get the body moving gently, in warm water, with good, easy resistance. I'm not doing that now even, as I can't get to the pool regularly and the effort is pretty extreme... just to get going and dressed is a bunch.

In PT in rehab, following PMR and the paralyzation I experienced, we noticed I did well on the recumbent stepper, and loved it. It made me feel great and I could slowly do it for a good while, 20 minutes plus... but, Boy Hidey! If I got too excited and overdid the stepper, which s my nature... either in the movements or the time using it, my muscles quit and refused to work. I couldn't walk well, my feet felt glued to the floor. Legs were concrete! back became painful. I could possibly shuffle my feet to move forward, perhaps not. It was astounding.

That says it all to me, right there. Excercise is not my muscle's friend at this point, not with PMR playing it's crummy games.

I am now in a other PMR flare... began a couple weeks ago and am on 16 mg Prednisone now, from 14mg. Not high enough for relief. But, don't want to go higher! It took a year to taper down from 20 to 14mg and I hate to get back up again.

I'm really having a lot of hip and thigh pain this time, shoulders are like concrete and upper arms are painful, as are my arthritic hands, fingers, lower arms, shins. I wake at night in bad hip pain, one hip at a time, although it is bi-lateral for both hips and shoulders. Fatigue is horrid. I sound like I'm I'm complaining, guess I am. I don't like this illness. It takes away so much from the bits of quality of my life at this stage, I am somewhat angry with it for being so persistent and mean. It is just plain mean!

Now, it's evening. I'm hurting more, took a Tramadol and waiting to be able to get to sleep. So, this is the way I sound when this happens. During the day, I seem to be doing fairly well considering, accepting the relapse ok and dealing with it, but folks... I am not a happy camper this week. Ready for something to happen to make it stop.

Visit with my rheumatologist next Monday, blood-work tomorrow and should be able to figure something out. Perhaps a different medication? A biologic? Or, increase Prednisone again. It does help and give me a bit of energy... tiny bit but that's improvement!

Acceptance! Deal with today as it comes. Focus on the things we know will improve whatever is happening... rest.

Blessings to each of you special folks. You are, you know. We are a crazy kind of club, we PMR survivors. Sturdy, strong, determined, caring and wishing you all the best of the day!
Blessings, Elizabeth

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Replies to "@scpartain and all... Yep! That's my finding as well. Not that I ever in the last..."

@ess77 Elizabeth…..I feel your pain…….etc. Pls know You are not alone on this emotional roller coaster.
My experience is, pool exercises are least impactful, assuming you can climb the stairs (was my initial problem). Tylenol for Arthritis was a huge help and ok to take with Prednisone.
Lastly, I love my biologic Kevzara…..note: it can take up to 3 months to kick in. I was able to get off prednisone.
Good luck, we are all with you