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DiscussionChronic GVHD ~ Let’s talk about it!
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: 10 hours ago | Replies (75)Comment receiving replies
Replies to "@loribmt Thanks so much for the reply and the resources. I went directly from acute skin..."
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Good morning @esp117 Your fortitude in coping with this multifaceted C-gvhd is on a superhuman level. As someone who had my own experiences with gvhd I know you’re not wanting to hear positive accolades for strength. Because I’m sure there are days you don’t feel strong at all. I felt like a poser most days. But I can tell you, it takes a special person to be able to meet each new challenge head on with grace and dignity and then accept, adapt and move on. So please accept my empathy and support in how you’re re-framing each situation and looking for a positive paths forward.
I can also empathize with having several specialists working with you and trying not to feel lost in the medical maze. Are your doctors involved with the transplant team and specialists in graft vs host? Were you in a larger research/teaching hospital for your BMT?