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DCIS. in SITU stage 0 Treatment
Breast Cancer | Last Active: 2 days ago | Replies (8)Comment receiving replies
Hi Alice! Way to go in advocating for treatment that works for you!! I am in almost your exact same situation with DCIS, and making similar choices. I was diagnosed in January this year, and am having my first active surveillance recall this month. I choose the no surgery path because, although it is quite small, stage 0, 1 cm, the calcification area would involve complete removal of my nipple and areola to get the margins. This would be a partial mastectomy, to remove something that may not need treatment. My PCP is very supportive; the surgeon wants to take it out; the oncologist wants me on AIs. I am also familiar with the Comet trial, and feel it is very significant. The surgeon—who I deeply respect— cites the lack of long -term data as reason to proceed with mastectomy. Can you tell me what monitoring methods were used during your rechecks? Why did they do additional biopsies—is that to be expected ? Thanks in advance! Sending a hug.
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@orienteer
Thank you for responding!
I am sorry for the location of your DCiS. That is a lot more challenging.
My stage 0 DCIS is in my Right Breast and was found thru biopsied suspicious calcifications in the lower outer quadrant ( face of clock dial area between 3-6 o’clock)
I get tomo mammo on affected breast every 6 months. They have found suspicious calcifications,
( meaning linear or grouped) twice in two years. Every Dec I get a tomo mammo on the affected breast and every June both breasts are imaged via tomo and ultrasound. When newly found suspicious calcifications are found, it constitutes another biopsy of the newly suspicious calcifications to see if cells broke out of the duct and spread to the tissue.
My July 2025 biopsy was negative. This past June they found more suspicious calcifications closer to the original diagnosis area, so I get another biopsy on Aug 4th.
Each time my stress and anxiety builds. This makes me lean again more toward lumpectomy with out doing the 5 yr hormone treatment. I mean, How many biopsies & clips am I gonna get. This new clip will make 4. ( I had a biopsy and clip placed in 2005 which was also benign)
The issue is, if I get the lumpectomy, and more suspicious calcifications show up later, then what, more biopsies???
It is a double edge sword.
It makes me crazy.
I will stay positive that the new biopsy will be benign.
I will continue to weigh my options after the new results.
The COMET trial
was only a two year trial . They do not have enough data years bjt what they have found out makes one pause.
They diagnose it as IN SITU , and say
“ Even though the abnormal cells are contained and cannot spread outside the breast, doctors generally recommend treatment for DCIS to prevent it from progressing into invasive breast cancer.“
None of that makes sense to me.
If it dirs not spread outside the breast (other organs, I guess) then how can they also say it could become invasive?
This is what is confusing to me.
One thing is for sure:
I so very grateful for finding this blog site. It helps to know I am not alone!
I am highly receptive to further communication!