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Intrathecal Pain Pump

Chronic Pain | Last Active: 10 hours ago | Replies (207)

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Profile picture for alexandercrps @alexandercrps

@heisenberg34 I agree with you, if it doesn’t work there is no point in dealing with all the hassle it is to be a «pain pumper». In my experience one needs the most
experienced and most proficient neuro surgeon and pain management doc you can find. This is a millimeter sport and typically when the catheter is not placed optimally it won’t work. Have you considered looking into a revision surgery to see if they can make it work somehow since you already have the implant. Do you also use orals for breakthrough pain? I just know that I had to completely redo my pump and catheter placement after finally finding a doctor who knowd how to use these pumps. He literally changed everything from the meds inside the pump to the placement of both catheter and the pump itself. It took me two years of trial and error before getting to a point where I finally started to get some relief. During those two first years I had zero pain relief from the pump and after the redo and news meds (he replaced the bupivacaine with clonedine and he also went up on the strength of the hydromorphone.) My point is there are so many things that can make these pump not work as designed, and one needs to find the surgeons and pm docs who actually know how to make these pumps work.

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Replies to "@heisenberg34 I agree with you, if it doesn’t work there is no point in dealing with..."

@alexandercrps I am glad to hear that you finally have some relief from your pump. You may have seen where I mentioned that I had one day where almost all of my pain disappeared. That can't just be a fluke. Yes, I take tramadol, baclofen, and gabapentin. Not sure how much they are helping. I do know that when I tried to stop the gabapentin, it was really bad, pain-wise. I have a neuro surgeon about 50 miles from me who is highly recommended. He removed my old spinal cord stimulator two years ago. Unfortunately, my pain doc doesn't show the slightest interest in helping me, pain-wise. He managed my pump and that's it. I am in the middle of trying to endure neuropathy. Balance is way off, feet ache most of the time. If I was back in PA, I would have many medical options within an hour. Thank you for sharing your story.