Hello @poppett,

I can understand you wanting to connect with others who have this diagnosis. It can be frightening to have something wrong with the pancreas. I have had an IPMN diagnosis for many years now; however, there has never been any reference to "highly atypical cells."

Before consenting to this surgical procedure, I assume you are getting a second opinion. A second opinion is always wise prior to major surgery such as this. I would suggest that this second opinion be at a Pancreas Center of Excellence. Mayo Clinic could be considered. Here is a link to appointment information for the three Mayo Clinic locations (http://mayocl.in/1mtmR63). If it is not possible to be seen at a Mayo facility, I would recommend contacting the Pancreas Foundation for a second opinion recommendation: https://pancreasfoundation.org/patient-resources/npf-centers-of-excellence/

You mention having existing digestive issues. Could you describe these issues?