I was recently diagnosed with Cogan's syndrome. I had uveitis 4 years ago with my first-ever dizziness episode. I had two major episodes of uveitis and dizziness, which resulted in hearing loss in both ears. For the last four years, my hearing has gotten progressively worse. I now have profound hearing loss in both ears. I learned today from a PET scan that I have inflammation in my aorta too. I've been on 20mg/day prednisone 25mg/week methotrexate. I tried mycophenolate as well as Kineret daily injections. We haven't been able to find a medication that works for me.