← Return to Going my way: Decided to stop cancer treatments

Discussion
kitty1952 avatar

Going my way: Decided to stop cancer treatments

Breast Cancer | Last Active: 3 hours ago | Replies (100)

Comment receiving replies
Profile picture for nannybb @nannybb

@mimi09 Thank you, thank you. Believe me...I worked OB-GYN and saw quite a few things I had no prior firsthand knowledge of.
I have spoken to numerous women and girls regarding self checking, not only manually, but visually.
In my family, we have two generations of Paget's disease of the breast, so I have told my granddaughter, grandniece and other females what to look for.
Paget's is rare. It presents as a scaly or crusty rash on the nipple. It can itch, burn, or ooze. I am posting this information for others on this forum, so they too are knowledgeable in knowing what to look for or give advise. It might be a long post, but it is important. In my grandmother's case, she had advanced dementia. She had been bedridden for some time. Her doctor came to my mother's home to diagnose her. His advise? Do nothing. Let it basically be how she would die. We, as a family, made the decision for her to have a double mastectomy. She survived and lived years longer. I do not believe my mother told me immediately when she saw signs on herself. She had always been like that. Did not like attention placed on her. So I don't know exactly how long she had it before treatment. She only had that one breast removed. After my father passed, it showed up the same way on her other breast. She had a biopsy and the doctor cleared her, saying nothing further needed to be done.
Within a month, she came down with pneumonia. She was hospitalized and they found a lump in her abdomen. It had metastasized to her liver.
My mother never wanted chemo or radiation, and her doctor did not press her. At ever visit, I walked back to privately ask the doctor the prognosis. He only gave one when it was totally untreatable. Cancer is an ugly, ugly disease. 😮‍💨

Jump to this post


Replies to "@mimi09 Thank you, thank you. Believe me...I worked OB-GYN and saw quite a few things I..."

@nannybb thank you for being brave enough to be truthful in telling your family’s history. We should all be able to do that for several reasons, but IMHO when we share our experiences we educate others allowing them to make decisions based on others’ experiences. That to me is more valuable than knowing the medical particulars. I want to know what symptoms someone else has experienced, how they made decisions, what they learned from those decisions, and how they handled the outcome.
My SIL’s 2 grandmothers, mother and her mother’s 2 sisters all had breast cancer. At 32 they advised SIL to prophylatically have bilateral mastectomies. She did not. She is now 80, a month older than me and cancer free. She on the other hand had C1,C2,C3 fused about 30 years ago, a very scary procedure.
We all have some medical issue, many more serious than others. Who am I to think I should be spared??