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← Return to Neuropathy following Robotic Prostatectomy
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Neuropathy following Robotic Prostatectomy
Prostate Cancer | Last Active: 9 hours ago | Replies (31)Comment receiving replies
@jchandler64 I know you’ve been thru a lot, but the ganglia might do the trick - I believe it’s further UP the chain and may be irritated.
At least you’ll KNOW the score on nerve blocks.
Also, did Mayo have access to your surgeon’s surgical notes? There is a lot of info in there that might be useful in helping them pinpoint ( sorry) the issue.
I really know what you are going thru - but I had zero pain, at least.
Phil
Replies to "@jchandler64 I know you’ve been thru a lot, but the ganglia might do the trick -..."
@heavyphil Thanks for the reply. Yeah, I don’t know why they didn’t just start with the ganglia. The side effects of the first two were mainly the elephant legs and some leakage. They have everything. Over 400 pages of notes were delivered plus all of my images. So far I have only seen a pain mgmt doctor. My pcp thought that was the best way to get in their system. We tried Moffit but they wouldn’t see me. They said it was because they didn’t perform the surgery🤔 I am seeing one of their Surgical Urologist on Monday. Who knows what he will order.
This has been a nightmare. With the frontal pain, the perineum pain, the constipation… And as you know, there comes the anxiety and depression. It’s something I think and feel 24/7.
Thanks,
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@heavyphil BTW, BOTH of your meds - especially Duloxetene cause constipation/IBS.
I know they are for your mental state because of all this, but talk to your doc about getting OFF these, or weaning down to offset the SE’s…
Gabapentin is used for anything and everything in the medical field - kinda like Windex in my Big Fat Greek Wedding; probably doesn’t do much of anything from what I’ve seen.
Phil