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Going my way: Decided to stop cancer treatments
Breast Cancer | Last Active: 3 hours ago | Replies (100)Comment receiving replies
@nannybb yes in her sandals or flips because my story is different from her in some aspects so I really am not standing in her shoes.
In 2002, DCIS -Ductal Carcinoma In Situ- was early stage cancer. Lumpectomy, margins not clear, second lumpectomy, 30 fractions of radiation. Easy peasy except for the decision making stress.
Clear sailing through every mammo from 2002 until 2024 when same breast nipple inverted and there was slight discharge. That was diagnosed as Invasive Lobular Carcinoma. I was 78 and doc wanted to do mastectomy and reconstruction.
That's when I'd had enough because I was also being divorced by my husband after 57 years. I researched, prayed, talked, questioned, listened then made my decision. Nothing thanks until I was totally convinced of the ate that was right for me.
Google Dr Ezekiel Emanuel, wiki as a start. Then just keep reading...
And pay forward to the next woman whatever you learn during your journey. We all need to share whatever we discover and encourage the next woman to do the same!!
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@mimi09 Yes, do find the u tube video where Dr. Zeke Emanuel speaks about the FALSE Atlantic article title that he did NOT write himself = he did not say Why I Hope To Die at age 75! This u tube video is entitled Why I Expect To Be Alive at 75, and he wishes to make it very clear that he never said why he hoped to die at age 75.
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@mimi09 Thank you, thank you. Believe me...I worked OB-GYN and saw quite a few things I had no prior firsthand knowledge of.
I have spoken to numerous women and girls regarding self checking, not only manually, but visually.
In my family, we have two generations of Paget's disease of the breast, so I have told my granddaughter, grandniece and other females what to look for.
Paget's is rare. It presents as a scaly or crusty rash on the nipple. It can itch, burn, or ooze. I am posting this information for others on this forum, so they too are knowledgeable in knowing what to look for or give advise. It might be a long post, but it is important. In my grandmother's case, she had advanced dementia. She had been bedridden for some time. Her doctor came to my mother's home to diagnose her. His advise? Do nothing. Let it basically be how she would die. We, as a family, made the decision for her to have a double mastectomy. She survived and lived years longer. I do not believe my mother told me immediately when she saw signs on herself. She had always been like that. Did not like attention placed on her. So I don't know exactly how long she had it before treatment. She only had that one breast removed. After my father passed, it showed up the same way on her other breast. She had a biopsy and the doctor cleared her, saying nothing further needed to be done.
Within a month, she came down with pneumonia. She was hospitalized and they found a lump in her abdomen. It had metastasized to her liver.
My mother never wanted chemo or radiation, and her doctor did not press her. At ever visit, I walked back to privately ask the doctor the prognosis. He only gave one when it was totally untreatable. Cancer is an ugly, ugly disease. 😮💨