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Neuropathy following Robotic Prostatectomy

Prostate Cancer | Last Active: 9 hours ago | Replies (31)

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@jeffmarc I consume zero calcium. My issue started on the front side. Got really really bad. Then this pudendal thing started. When they were both at their peak I thought I couldn’t take it any longer. Started drinking. Heavily to medicate myself at night when it was at its worst. That’s on top of a lot of Gabapentin and Duloxetine.
I don’t do that anymore. I still take the meds. No one. I mean no one here in my area, Central Florida, has ever heard of these issues or ever treated anyone with my complications. The Mayo considers it very rare. I consider that my surgeon messed up. On the table for over four hours for a RARP? My penis used to be 2.5-3 inches soft. Now I make the statue of David look like a porn star! No joke. TMI? Maybe. But it might trigger someone reading this to reply, I WENT THRU THE SAME THING!

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Replies to "@jeffmarc I consume zero calcium. My issue started on the front side. Got really really bad...."

@jchandler64 I know you’ve been thru a lot, but the ganglia might do the trick - I believe it’s further UP the chain and may be irritated.
At least you’ll KNOW the score on nerve blocks.
Also, did Mayo have access to your surgeon’s surgical notes? There is a lot of info in there that might be useful in helping them pinpoint ( sorry) the issue.
I really know what you are going thru - but I had zero pain, at least.
Phil