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Neuropathy following Robotic Prostatectomy

Prostate Cancer | Last Active: 23 hours ago | Replies (28)

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@heavyphil Thank you very much for the info into your journey with RARP. So far I’ve had two nerve block procedures. Dorsal Penile and Bilateral Pudendal. Very little relief. They, The Mayo, want to do a third. Ganglion Impar. I’m not sure I wanna have another one. Side effects are not terrible but I’m just not convinced it’s gonna make a difference. I would give anything to have a normal bowel movement. I go to the throne no less than 10 times a day. No relief. Just bits. I have another appointment on Monday with one of their Surgical Urologist. I parted ways with mine. We drive four hours each way. We’ll see. I will say this, I’m 100 times better than a year ago. But, I tell my closest buddies, you would think you are dying with just the pain and discomfort I’m experiencing right now. I was suicidal a year ago. Would never do it but when you’re laying there at night, when the pain is at its worst, you have thoughts. How much longer can I put up with this. At my last procedure I was asking a lot of questions. Their answer was almost always, “we don’t know. This is a very rare complication. RARE.
Thank you for the message and i apologize for the lengthy reply. God Bless!

Joe

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Replies to "@heavyphil Thank you very much for the info into your journey with RARP. So far I’ve..."

@jchandler64
I’m not sure if you are taking calcium but if you are, you may want to stop for a few days. It makes your stool very hard, which makes it very difficult to poop. You end up with the situation you’re talking about where you can only go a little.

I had this problem after having my AUS installed. They told me not to Strain because of the stitches in my perineum and I was Really having a problem. I stopped calcium And then used a bisacodyl suppository. They’re supposed to be effective in 15 minutes to an hour, Fat chance. Six hours later, I’m going to take a piss and realize that I gotta do a lot more than that, It was like an explosion two or three days all at once. Complete relief. Since then, my calcium elimination has resolved the problem, Though I am still taking one Senna and one colace twice a day.

I do have to go back on calcium In a few weeks when I’m completely healed, but I will reduce the amount I’m taking.