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Anyone have success with treatment for vaginal Lichen Sclerosus?
Autoimmune Diseases | Last Active: 21 hours ago | Replies (198)Comment receiving replies
@fdixon63
I have had Tulip Procedure at Coyle Institute in Pensacola three times, with what I consider to be great results. For me it gives relief from itching and flares for about a year, then it’s back to Dr Coyle for another treatment. Totally worth it for the months of relief it gives. Sadly, my body just never gives up on the LS gluing things together and the misery returns. (I tried another urogynocologist in Phx but he ended up being a charlatan imo, didn't remove any scarring, gave zero relief.)
I encourage you to try Coyle Institute since you live that close.
Wishing you the best.
Replies to "@fdixon63 I have had Tulip Procedure at Coyle Institute in Pensacola three times, with what I..."
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@2thfairy Thanks for your post. I've stopped using Clobetasol. I feel it has been contributing, in part, to the pain. Very possibly I've developed a sensitivity to it over the years. I now take anAnucort suppository, cut it in half and heat it in the microwave for 21 second-- in small clean dish. I put on a light pad so I don't get anything on my clothes. I then hold it in the vaginal area for a minute or so, then pull the panties snug up and sit somewhere for a bit and the suppository can further melt and settle in the area. All this was discovered accidentally and in a time of desperation. I do this once or twice a day. I will be asking my dermatologist or uro/gyno doc if there is a cream with similar ingredients that I can buy as the co-pay for Anucort has jumped to almost $400 from $30. I now have NO PAIN and can pee without pounding the wall with my fist--hurting. Will this work for others?? Do I recommend it for others?? We all have to make our own decisions. Best of luck to all.