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← Return to PRRT Treatment: What to expect?
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PRRT Treatment: What to expect?
Neuroendocrine Tumors (NETs) | Last Active: Jul 1 6:48pm | Replies (30)Comment receiving replies
We have another question for those who have had the PRRT treatment. My husband had his 1st treatment on June 2. Everything went well. He has experienced the fatigue that many of you commented on. He is starting to lose his hair. We are wondering if that is also a side effect of the radiation. He just returned from a Canadian fishing trip. Coming back, they put a geiger counter on him. It registered 1700. The guard said that was the highest they had ever seen. However, our son googled it and found that is more of the median number than extremely high.
Replies to "We have another question for those who have had the PRRT treatment. My husband had his..."
@rkklinger last week I also returned from a Canadian fishing trip and set off the radiation detectors at the US border. It was one month after my 4th treatment and the drive through gate, large and small hand held detectors all registered high levels. One of the dectectors said the radiation source was plutonium which got them pretty excited. Fortunately, I had a letter from Mayo describing my treatment. The agents still had to fax the letter and radiation readings back to DC to get approval for me to return. It took 45 minutes.
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@rkklinger: I hope your husband is tolerating the fatigue that many experience during PRRT. I hope he has lightened his responsibilities and is able to take naps and rest when his body tells him he is getting very tired. Our bodies seem to regenerate during sleep and after all PRRT is working overtime killing our NET cells - at least we can accept some fatigue & added rest times! This treatment is only for 6mo. I’m over two years OUT of PRRT Lutathera treatment and am so grateful for the quality of life I am living.
You mentioned losing hair and my PRRT experience is that I lost hair on legs, arms, and some thinning of my scalp hair - some has grown back but minimal on legs & arms. My treatment for NETS has only been Lanreotide monthly shots and then PRRT when tumors progressed. Perhaps the loss of hair you are experiencing is a side effect of prior Radiation Therapy?
I feel you are fortunate to be able to receive these 4 infusions of Lutathera PRRT! Best health…