← Return to Anyone have pNET in pancreatic tail & had distal pancreactomy?

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Profile picture for mcharlesfrancis @mcharlesfrancis

@katzen5 Right now, try not to jump ahead of yourself. The scan tells us there is a mass, but your doctor will need to review all of the imaging and, if not already done, the biopsy results to determine exactly what type of pancreatic cancer it is, whether it has spread, and whether surgery is an option.

When you meet with your doctor this week, some important questions to ask are:

Is this pancreatic adenocarcinoma?
Has it spread anywhere outside the pancreas?
Is the tumor resectable, borderline resectable, or unresectable?
Will I need additional imaging or a biopsy?
Should I have genetic testing and molecular profiling?
What treatment do you recommend first?

I would also encourage you to look into the Seena Magowitz Foundation. They host Zoom support meetings for pancreatic cancer patients twice a month, where you can talk with others who are on the same journey. Many people find it comforting to connect with patients who truly understand what they're going through.

Take one step at a time. You don't have to learn everything today. Get through this appointment, ask your questions, and let your doctors help you build a treatment plan.

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Replies to "@katzen5 Right now, try not to jump ahead of yourself. The scan tells us there is..."

@mcharlesfrancis , thank you so much for your encouraging words, I truly appreciate it.
Also thank you for the list of questions I should ask my doctor. I will print your answer and take with me as soon as I get my appointment.

I still seem to be in a daze as this was so unexpected.

I will keep the group up to date.