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Brinsupri experience after 3+ months

MAC & Bronchiectasis | Last Active: 6 hours ago | Replies (292)

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Profile picture for lunglady @lunglady

I have been on Brinsupri for 4 months. It has been a miracle drug for me, no more coughing! I did experience mild hair loss but this has since slowed way down, and was the only side effect. I did have cotton mouth for the first week but immediately upped my fluid intake and did not have a problem after that. I took the cotton mouth as a positive sign of drying up all the mucus and gunk in my lungs. I may have a bad coughing day but no flare ups or heavy coughing spells since being on this drug. I sure hope to be able to continue on this wonderful drug. I have had mild dry skin but no worse than before, I have not had headaches or dental problems. I am hoping the copay on this drug will decrease …$$111 per month is a little steep for someone on social security. Thoughts?
I only wish they had this drug sooner as I have had BX for over 25 years.

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Replies to "I have been on Brinsupri for 4 months. It has been a miracle drug for me,..."

@lunglady
Please have your Doctor file the paper work through Panther Pharmacy. There is a program where you only pay $10 per month.

@lunglady I go through Panther RX and my copay is 100% paid by "The Assistance Fund". I can't recall if it was INSMED or Panther that initiated the paperwork. They do ask about income, but it's fairly lenient.

@lunglady I am going through insmed and they arranged payment through The Assistance Fund . Between humana and TAF, I have zero copay. I have been on brinsupri 10 months.