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Has anyone been diagnosed with Refractory Celiac Disease?
Digestive Health | Last Active: Jul 1 7:35am | Replies (6)Comment receiving replies
@szelis, I'm tagging @dmmeyers62 @saucy who have talked about refractory celiac disease and may be able to share more with you.
You may also appreciate these 2 articles and videos from Mayo Clinic's Dr. Murray:
- What to do When A Gluten Free Diet Doesn't Work https://connect.mayoclinic.org/blog/gastroenterology-and-gi-surgery/newsfeed-post/what-to-do-when-a-gluten-free-diet-doesnt-work-1/
- 10 Things Gastroenterologists Should Know About Celiac Disease https://connect.mayoclinic.org/blog/gastroenterology-and-gi-surgery/newsfeed-post/10-things-gastroenterologists-should-know-about-celiac-disease-1/
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@colleenyoung The first article was very enlightening. All my blood tests come up negative; however, I do have chronic gastritis, collagenous microscopic colitis (not responsive to budesonide), Pancreatic enzyme insufficiency, and now Barrett's esophagus.
One thing I'm grateful for is that I now have a GI who actually believes me. My others kept saying, " Well, I don't know, just stay away from gluten." Even though I have been 100% gluten free for over 20 years