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Metastatic colon cancer on the vaginal cuff
Colorectal Cancer | Last Active: Jun 29 11:34am | Replies (19)Comment receiving replies
@ferrazcri
I had not heard of ctdna before! My Dr does not utilize it… I too am NED, but was prior to chemo as well. I was asymptomatic and don’t follow normal CRC patterns. Sounds like you are similar. I don’t think you would need a onc gyn if its crc unless it requires operating. Then I would want a specialist in that girly area! Even though I am NED my dr is keeping me on a lower doseage of folfiri because it had come back so quickly after the first rounds of chemo had ended. She believes that due to the type and aggressiveness we should be on lifetime treatment until it stops working or my bone marrow stops producing white blood cells. We just took a 3 month break to give my bones a break from the udenyca shot (bone marrow booster to force wbc production) due to not being able to physically move or stand for a week without excruciating pain. My son had to assist me from room to room. She was against a break chemowise, but my body said stop in the name of love! Did they run a genetics test on you to see what other treatments were available or would work? Good luck tomorrow! I have to go to my onc gyn for a check up myself tomorrow ugh. Keep me updated!
Stacy in NY (the state, not the city!)
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@myjiggers1
Hi Stacy!
The ct DNA test I do is called Signatera.
My doctors use it to make decisions about the treatment, complementing scans, and other exams.
They paused my chemo based on my ctDNA that remained negative several months. They use it during and after treatments/ surgeries to lead their decisions.
The flag raised as soon as it became positive below range (0.06-0.09) which is very low, but positive for cancer cells in the bloodstream.
I understand. They will probably want to put me back on chemo, at least until the ct DNA becomes negative again. This is my guess.
I’m sorry to hear about your pain and I’m glad they gave you a break! 🙏🏼💗 Been there girl. I had leukopenia while on Folfox (my first treatment was Folfox and the second time Folfiri ) and needed the injections too…
As for other treatments, my doctor has mentioned Cetuximab in the past. I am also a good candidate for rebuking. Not sure what they will do now.
Thank you for sharing your doctor notes 💗
I saw your diagnoses and I thought it was interesting that I have a history of endometriosis, which is not the same than endometrial cancer, but you know, it’s a disease from the same nature. My gynecologist said endometrial cancer behaves like crc. Our bodies are so complicated.
Thank you again for reading my comments!
Sincerely,
Cristina
💗