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briarrose avatar

Kisquli Tolerance ?

Breast Cancer | Last Active: Jun 28 3:35pm | Replies (12)

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Yes, I understand what you are saying. I take it - you are now off Kisqali and letrozole?
Since I am on medication for cardiac microvascular disease nothing really can be adjusted if started on Kisqali.
I am already on the lowest dose possible with excellent effectiveness. My sleeping aid and medication for panic disorder (PTSD) are also effective. I have already spoken to one pharmacist who works directly with my breast oncologist and, frankly, he seemed not alarmed re: side effects for me. But, as you said, no one really knows, until you are actually on the drug to see how one tolerates it. I am on exemestane and Kisqali would be an add on...the % of helping to stop a reoccurrence? I was given a number of 10%. My onco said this is "huge".
The cardiac side effects are most frightening to me. I would be monitored with blood work and EKG every 3 months. The drug is given for 2 hears. 21 days on and 7 days off. Dosing would be 200 mg. twice a day.
You already posted my numbers, i.e. oncotype # stage, etc.
Perhaps it's not fair to ask you but you are a pharmacist - I know you already took it - but what you know about me re: my posts, do you think it's the way to go for me?
Kind thanks for your thoughts.

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Replies to "Yes, I understand what you are saying. I take it - you are now off Kisqali..."

@briarrose Have you spoken to your own pharmacist? I've found they can be very helpful. We can share our own experiences here on Connect, but don't give medical advice as we're not medical professions. I hope you are getting some good feedback, but to make the decision a pharmacist might help. Did you ever see an oncology pharmacist? I think you mentioned that possibility.