@gareee314 Perhaps someone here has some idea what is going on with you. Most of us are not medical practitioners but a few are.
When it comes to our healthcare, we are our own best advocates. We have to hound the profession sometimes and insist on referrals if we don’t get help. Often a large clinic can get to the bottom of the issue. A trick that works is to casually mention to the physician who has no idea, “Maybe the autopsy will give us a clue.” That usually gets the situation rolling.