@tbow I hear your frustration. I was diagnosed with MM in early 2025 and had a stem cell transplant in late October 2025. Prior to diagnosis, I took no medications, just supplements and I worked with a Chinese herbalist. I am currently on maintenance treatment of revlamid and darzaflex. I don’t like being on revlamid,though my side effects could be worse; my doctor and I are working on the dosing. It is frustrating, but revlamid is an important medicine in many maintenance treatments for MM.
I encourage you to get connected with a MM support group. I attend the one from Dana Farber, where I had my transplant (I live 2 states away). It has been unbelievably helpful to know that several people in our group have complaints about revlamid. People shared things that might be helpful, but just knowing that I wasn’t alone it this was so helpful.
More importantly, keep talking to your doctor or reach out to your nurse navigator. I also agree with others on this site that International Myeloma foundation and the Multiple Myeloma Research Foundation are great resources . I view MM as a chronic illness and just like any other chronic illness, it has treatments that one may not like but that they need. There is a lot of uncertainty, be kind to yourself. Hang in there.