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Post stem cell transplant complication - medical mystery?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: Jun 28 5:12pm | Replies (5)Comment receiving replies
After receiving Car t cell therapy on March 23, 2026, my husband, 71 yrs old, is still 30# underweight, severely fatigued, depressed and now had pneumonia with no immune system.
He's been hospitalized twice since his release after the therapy and is struggling ..
I feel like these patients are all experiments. Some have happy endings for awhile and some never do and their bodies are out through chemical hell. I know it's each individual's choice, but after what he's been through, no thank you.
He's been through 4 different chemo regimesn treatments the year previous to his transplant in March. The insurance company insisted that he fail 3 before he could be considered for the Car T.
They made him wait too long and flooded his body with chemicals that all failed to slow the lymphoma progression . We've been married 44 years and this is the saddest part of life we've ever gone through.
I hate to watch him suffer.
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@nfoltz I am sorry to hear about your husband’s struggles with infections after CAR-T therapy. I have never had CAR-T myself, but I remember how challenging it was when my immune system was practically nonexistent after my stem cell transplant. I never developed pneumonia, but I was hospitalized a number of times with fevers. It’s a scary time when the immune system is so weak!
CAR-T is a pretty new treatment, so there is still some trial and error involved even now. Sometimes our diagnosis doesn’t give us many options for what therapy we can choose. And even a patient with a successful CAR-T or SCT can be thrown into a health crisis because of an infection. There are so many possible complications that can occur when the immune system is so severely compromised.
My recovery from SCT was also a turbulent time, I was bedridden for months and had numerous hospitalizations. I completely understand your fears and frustration!