← Return to Neuropathy Awareness - Foundations, Research etc

Discussion
megidigo avatar

Neuropathy Awareness - Foundations, Research etc

Neuropathy | Last Active: 6 days ago | Replies (6)

Comment receiving replies
Profile picture for megidigo @megidigo

@johnbishop
Thanks. I will take a look at the pdf.

The problem I brought up I would like to find a solution to. Even if you look at facebook groups its just the same questions about the same products over and over again and there is no involvement from admins or moderators which makes me think there is lots of bots in the group and also the actual intention of the facebook group. I wander if it is for the intention of monetization I could very well be wrong but that is the impression I get. Anyways something that I keep thinking of. If only I had some status to start something. I notice there is more activity in CIDP groups as well ie- fundraising, awareness, people involved.

Jump to this post


Replies to "@johnbishop Thanks. I will take a look at the pdf. The problem I brought up I..."

@megidigo - I haven’t noticed any fund raising in the CIDP discussions. Fundraising is against the guidelines for Connect. Organizations like the Foundation for Peripheral Neuropathy do have a lot of research and fundraising but it is for real research projects.