@megidigo You are not alone. I think the problem from what I can tell is that the research is being done in the background and unless you are involved or actively looking for the latest research you won't see it or hear about it. It's really what brought me to Connect in 2016 looking for answers for my idiopathy small fiber peripheral neuropathy. I guess I should consider myself lucky that I don't have the debilitating pain and only have numbness, some tingling and the stinking balance issues that go along with neuropathy. You definitely have to be your own advocate by learning as much as you can about the condition and what treatments are available that may help. No one treatment works for everyone so that's why it's not an easy task. Here's some notes I took at one of the last Minnesota Neuropathy Association meetings I attended before they disbanded. We had some guest speakers on the latest research back then and I liked that they provided some interesting topics on the latest treatment at the time. There are links to the different research if you are interested.