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← Return to Kisquli Tolerance ?
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Thanks for posing this question. I am not there yet, ( having to decidecide about ribociclib) but the decision will be coming up within next 2-3 months.
I have had such difficulty with MSK pain- should rotator cuff tendinopathy ) on letrazole that I had to stop after 4 months. General MKS pain manageable but those xhoulders! I need to decide what otherr hormone blocker to try before I get into CDK4/6 inhibitors. (Oncotype 11, Stage IIb? Initial lumpectomy November 2025 one node discovered involved and removed 8 months after dx. ) This has turned out to be a really long haul ( Dx end of Aug 2025. )
I will be following this thread closely. Thank you
Replies to "Thanks for posing this question. I am not there yet, ( having to decidecide about ribociclib)..."
@judithgrossman Your breast cancer picture sounds a lot like mine. BM in May 2025 so I am 13 months out. The decision to start Kisquli must be made soon as it works best within 1 year of your diagnosis/surgery. If you are on cardiac medication (as I am) this is very tricky re: side effects which can be very serious. And also any benzo's for anxiety/sleep which I am on also.
So I must do more research. The oncologist pharmacist (who called me today) has advised me to speak with my cardiologist and psychiatrist. I hope they will be informed...no guarantee on it though. Medicine likes to stay in their own wheel-house. Hopefully I will get help to make the best decision I can. If there are any more thoughts out there, would love to hear it.
Kind thanks.
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@judithgrossman
the protocal where I am is to take ribociclib 3 weeks out of 4 and monitor blood work monthly to catch neutropenia low WBC etc and adjust number of weeks permonth on the drug based on blood test restuls. They say that after monitoring closely for 3-4 months they stop monitoring so closely becuase they have established how you react and how many weeks off you need a month.
Thanks