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It’s Been A 26-Year Long PSA Journey
Prostate Cancer | Last Active: 15 hours ago | Replies (23)Comment receiving replies
It's been two years of no detects for me. But I still hesitate to look at results before doctor visit. I call it living 6 months at a time. At 69, I figure if it does come back, I'll probably die of something else before the prostate cancer.
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@marlon wrote "I still hesitate to look at results before doctor visit. I call it living 6 months at a time."
That's fair, and for many people, it's a good strategy for mental health.
My approach is the opposite: I'm effectively the project manager of my healthcare (I see lots of specialists, but they mostly work in silos), so I'm the one who has to understand the big picture and coordinate across different specialties.
They all have access to my online chart, but seriously, it's likely thousands of pages long after my prolonged hospital stay and all the post-surgical complications, and who has time to read or even skim all of that? They all know the big picture: 61 year old male with oligometastatic prostate cancer (etc etc) but they might not happen to notice an important detail buried somewhere in there (e.g. I'm on blood thinners because I had DVT when I was paralysed in a hospital bed in 2021).