@hopeful33250 Hi - my lung net surgery was 2 1/2 yrs ago- RML lobectomy with further diagnosis of DIPNECH. That diagnosis helped explain a lot of things. For example, it is common to have shortness of breath on exertion with.DIPNECH, which I had for many years prior to diagnosis the doctors assumed was asthma. Inhalers didn’t help, but frankly didn’t use them much because I was able to stop the shortness of breath if I slowed down my pace, etc. My surgery went well, I have not needed further treatment but to get scanned every six months, and now we’ll start with once a year. Surgery recovery was not fun, but was well worth it since one of my lung nets had turned malignant. Hope this helps.

@hopeful33250 My surgery was almost a year ago. I have been dealing with pain ever since. I have posted more than once that it was due to the surgeon using a robot and my having a small frame. I was released from the hospital too early and had fluid still in my lung. I started coughing, and had to go back for an aspiration of the fluid. I've had two nerve blocks, and am scheduled to have an ablation in August. My oncologist ordered another PET as he was not certain I had DIPNECH. My surgeon was upset that I added the oncologist to the team. It has been a bit of a rough ride. I've been on the three times a day self injected med. , and then switched to the once a month. I did not like the monthly injection at all, so the oncologist said I could go off until he knows more. I am anxious to know all of what I have read regarding the PET scan. It is not totally understandable to me. I also have to find a good pulmonary and cardiac doctor. Not easy because United Healthcare has pulled out of some specialized doctors where I live. I believe that is why I got a rejection from Medicare. Sorry this is so long.