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Ongoing jaw pain in established GCA/PMR patient

Polymyalgia Rheumatica (PMR) | Last Active: 5 days ago | Replies (18)
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@jeff97
Many thanks for your help. Will contact Rheum for possible dosage adjustment. Many thanks for your response.

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Replies to "@jeff97 Many thanks for your help. Will contact Rheum for possible dosage adjustment. Many thanks for..."
nogiant54 | @nogiant54 | 6 days ago

@nogiant54

Rheum PA added predisone dose of 10mg at 5:30 pm- total is 70 mg per day (3 - 20 MG in morning) . Night dose has definitely controlled jaw pain thankfully and feeling better! Still only getting 3 or 4 hours sleep probably due to predisone. Not sure when starting Actemra infusions.
(1) Any side effects from Actemra? Read they give you Zyrtex before starting Actemra - heard rash common side effect from Actemra.
(2) How long before taking Actemra does it start working? Hopeful predisone dose can be lowered after Actemra kicks in.
(3) Are GCA patients also seeing neuro opthamologist regularly? Thanks so much for your input!

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