Connect
← Return to Tell us how you "Live Life Fully" with Bronchiectasis and MAC
Discussion
Tell us how you "Live Life Fully" with Bronchiectasis and MAC
MAC & Bronchiectasis | Last Active: Jun 27 7:01pm | Replies (55)Comment receiving replies
@mffox I may have missed how long you have had BE.
How long have you had it and were you having to clear and remove (spit) as much as you do now as it was in the beginning for you. Was it less of having to do it in the beginning.
I have to constantly clear what comes up to my throat. Much of what you have said sounds like me with needing to clear out what comes up to the throat.
I have a cup with me all the time.
Barbara
Replies to "@mffox I may have missed how long you have had BE. How long have you had..."
Connect
@blm1007blm1007
I was diagnosed with MAC in 1997. I didn’t hear the term bronchiectasis then… the focus was on clearing the infection, and then dealing with subsequent infections. I wish I’d had a better picture of what I was dealing with and what the long term consequences might be.
Cough varied with the status of infections but a persistent productive cough has been present since @2003. I’ve had a spit bowl for at least 20 years. I’ve been colonized with pseudomonas bacteria for about 15 years, treating with various antibiotics. A course of antibiotics would reduce the severity of the cough but it was never entirely gone until last month, when I started a new program of nebulized Tobramycin. It has been amazing, I’m enjoying the freedom but not expecting it to last forever. The bronchiectasis as still a reality and I expect to continue to experience other infections over time.
Meanwhile I continue with my vest, medications, and other measures to keep the airways open.