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Metastatic colon cancer on the vaginal cuff
Colorectal Cancer | Last Active: Jun 29 11:34am | Replies (19)Comment receiving replies
Hello!
I hope you’re doing well!
I just learned from my biopsy that I have crc recurrence in my vaginal cuff (in 2024 it landed in one of my ovaries, that’s why the hysterectomy).
I’ve been googling since last night and the only report similar to mine I found was yours! It got me thinking, are we unicorns? 🙃
Well, I am talking to my doctor on Monday and I will try to stay put until then. I don’t know if I ‘ll have surgery or they will go straight to systemic therapy.
But I was wondering if I could learn something from you about your experience so that I could have an idea.
I read about brachytherapy and chemo and/or surgery. But everything is syill blurred and I am so confused .
Hopefully things will fall into place.
Thank you!!
Replies to "Hello! I hope you’re doing well! I just learned from my biopsy that I have crc..."
@ferrazcri
P.S.
The radiation was localized. They measured my body (so embarrassing) then tattooed (little dots) where the lasers had to go to target the exact location. Then you literally lay down in a machine and relax in your mold they made of your shape while it moves around you. No pain. No side effects. They did a PET scan to get the location of the tumor.
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@ferrazcri girrrrlll! I was so confused that it could even go in those places! Its very rare! We are special! Also sounds like you have chemo brain too eh? Mine is awful!!!! So…. We did radiation on that spot. 5 rounds. Scary… but super easy. It took about a couple months to clear away totally in conjunction with Folfiri. I have right sided crc which makes it aggressive and hard to treat with anything other that chemo and radiation. There is a hail mary medicine they will try when this stops working, but I am basically on a maintenance regimen now. Every 3 weeks at a lower dosage than the full on treatment. I had a partial hysterectomy in 23 due to a pre cancer from hpv. They found stage 1 uterine while doing that. When my iron levels didn’t increase we did a colonoscopy endoscopy and found the crc. Did Folfox for 12 rounds (only 3 rounds of the oxaliplatin due to allergic reaction with full body numbness and breathing problems) then 8 months later I saw bleeding. Was soooo hoping for a collapsed wall and then the onc gyn tested and we were then hoping for the uterine recurrence…. But nope! CRC. Stage 4. I have been on folfiri immediately following the results and then radiation 1 month into the symptoms. I just had my first 3 months break from chemo and still have beautiful CT scans. I am feeling optimistic. Its been since August of 2023 with the diagnosis. My Doctor says its a miracle it hasn’t gone anywhere else yet. I agree! God is on my side! I am so sorry you are going thru this all! I would love to hear more of your story and how you make out! Prayers coming your way!
Stacy