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Today is first day of 0 prednisone (but on kevzara)
Polymyalgia Rheumatica (PMR) | Last Active: Jun 26 1:02pm | Replies (10)Comment receiving replies
"He then put me on 20mg for 7 days and tapered every 7 days until done so 20mg to 15mg to 10mg then 7.5, 5mg and off prednisone in 5 weeks. Flared up 3 weeks later on prednisone again for 3 weeks off again and then on again for another 3 weeks and now have been off for 9 days and have some small pain but manageable."
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This isn't a standard Prednisone taper for PMR. I'm not too surprised by the relapses. Are you saying you have been in remission for 9 days while on no prednisone?
Why were you given antibiotics in the ER initially? That suggests they thought you might have reactive arthritis.
https://my.clevelandclinic.org/health/diseases/reactive-arthritis-reiters-syndrome
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I remember when I had to stop and rest when walking up a slight incline about a year after I was diagnosed with PMR. Prior to being diagnosed with PMR, I could easily run 2-3 miles 4 days a week. I preferred a 30 mile long bicycle ride. I was 52 when I was diagnosed with PMR and I'm now 72. I'm still being treated for PMR. You might need treatment for a lot longer than your doctors think.
I'm in Iowa City. You might want to be referred to the University of Iowa if you relapse again. There is probably a long wait list but maybe sometime this year or early next year.
Replies to "@bkearbey1 "He then put me on 20mg for 7 days and tapered every 7 days until..."
@dadcue At the ER they new I had bursitis in my right elbow around the 1st of August. After a few days I had like 7 mosquito bites in a 10 second span while weed eating. Soon after I ended up with PMR. I then found out 01/31/2026 that my grandpa and his sister both had PMR in the 1980's. In February when I saw the specialists he started me on a lower dose since I had been on 10 mg of prednisone for more than 3 months. So far every time I go on and taper off I have nothing that causes me unmanageable pain for usually 2-3 weeks. I am definitely following my Rheumatologist plan. Back in August, September and October I felt like being dead would be a better option than the pain I was dealing with. Just feel grateful that I have the option to go on prednisone if needed and a low dose of 10mg gives me 100% relief until a couple weeks after tapering off. So far absolutely no side effects to the prednisone. I have read a lot of these post and I feel fortunate to be where I am at. Bill
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@dadcue it's horrible what this does to your muscles, I'm hoping to build some back now that I'm at 0 mg..... (day 2, so far so good, but a long way to go before I claim remission)