Connect
← Return to Day 4 of prednisone and happy! Stay at 15 or go up to 20?
Discussion
Day 4 of prednisone and happy! Stay at 15 or go up to 20?
Polymyalgia Rheumatica (PMR) | Last Active: 5 days ago | Replies (29)Comment receiving replies
@stonewheel I thought I was having a flare and upped to 20 for 2 days. It was awful! Thought I was going to die. Now, I think I didn’t have a flare but was tapering-off that was causing my hip/ arm pains and stiffness. I am at 1 mg now per Rheumy’s suggestion. Feel bad, stiff, hip pain, arm pain. I don’t think it’s my PMR. I feel like a Prednisone junkie… ☹️
Replies to "@stonewheel I thought I was having a flare and upped to 20 for 2 days. It..."
Connect
@gilbert56
Thanks for the update.
You’re not alone. Prednisone can be a love/hate thing.
It can feel like it is working a miracle, but like a deal with the devil, it makes one pay for it.
Your rheumatologist sounds good.
Your stiff hip and arm pain might be that your adrenals have not fully rebooted. Not working at 100%. They aren’t making your cortisol fully yet. I’ve read that the pain resembles PMR and it is difficult to know if it’s PMR or adrenal insufficiency.
My hips now get sore if I sit too long, not like PMR though, and when I stand my first steps require thought sometimes because of the soreness. Prednisone has probably eaten away at my bones and cartilage, plus every day I’m another day older.
Keep doing what you think is right and trust your rheumatologist if you agree with their plan. Ask them for clarification. And, ask them what their end-goal is for you.
Sorry for the long reply.
Movement, sleep, water and healthy food.