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@andwho good morning I get diagnosed with Laken sclerosis back and about 2015. Had a radical valvectomy in 2019. Endured radiation and chemo. It’s been a long journey ladies six years of diligence biopsies, constant monitoring and now it’s moved to my anus so more biopsies more appointments another specialist in surgeon and waiting results of biopsies on the same area looking like the cancer is back after 67 years no the isolation well, it’s funny our kind of cancer. Everybody asks what kind soon as you mention it they shut the hell up. Don’t know what to say. I can only say my diligence hopefully caught it at stage one not stage three like last time. I’m finding it to be quite frustrating. All the creams do damage. One thing after another have been staying off the site for obvious reasons like to be words of encouragement not words of burden say a prayer.

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Replies to "@andwho good morning I get diagnosed with Laken sclerosis back and about 2015. Had a radical..."

@samanthabouchard Nothing you’ve written is burdensome. We are a support group. We share as much or as little of our own stories as we want and we make an effort to encourage one another.

Many of us here have kept our respective diagnoses from people other than our close family and friends. I did that because I had endometrial cancer and gosh, this involves, gulp, my private parts. I didn’t want to hear anyone else’s story about their sister, their neighbor, their friend of a friend. And especially did not want anyone to say - as one person did - “do you know what caused this?”.

I’m sharing the above because I’m figuring it’s the position you are in. Many people do not hear about some parts of the body. I’ve asked my NP in gyn/oncology at Mayo Clinic and she sees women with these cancers. I expect that yes, your diligence in your check-ups and biopsies means that the cancer was caught early. I’m glad to hear that.

I hope you will continue to come back to this site and allow us to support you. Are you currently in treatment?