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Colleen Young, Connect Director avatar

Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 1 day ago | Replies (6856)
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Profile picture for SusanEllen66 Susan McMichael @SusanEllen66

@cheyne thank you!
I’m a natural fast walker. I was raised near New York City. If you don’t walk quickly, there you can get pushed, and run over.
I moved from there 40 years ago and still I walk fast.
Now, if I am on a level floor, I can zoom by everyone using my walker. If I try and slow down, I tip over…
When I walk around the house I typically don’t use a cane or walker unless I am feeling really “off”, or I need to bend forward. Forward movement causes me to lean backwards.

Thanks for sharing with me. You’re first person with FND I’ve had the chance to talk with..

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Replies to "@cheyne thank you! I’m a natural fast walker. I was raised near New York City. If..."
cheyne | @cheyne | Jun 26 1:27am

@SusanEllen66
Hi,
You are more than welcome. Any time I'm more than happy to share info. I only happened on FND by chance when I read an article from Australia of a young woman who had been branded with the psychological label. What a lot of us are accused of through ignorance. She was getting long periods of temporary paralysis which rang a bell with my short-term bouts of paralysis. I had known for a few years about the autonomic polyneuropathy although no one had bothered to confirm it. Now looking back trying to find the trigger that may have started this issue the information has been a revelation. It is obvious the poisoning of Michigan state with PBB is likely my trigger. Exactly when the FND may have started is more difficult to define with several major incidents over the years that have targeted the brain. I'm picking 15 TIA's over 3 days the likely cause. Anyway, the pair gang up on me now making life as difficult as they can because they can. I seem to spend an enormous amount of time researching the subjects using AI as the index to a medical library I don't have the use of. I thought knowing would be the end of my research but no it isn't. I need to know how it is likely to end my days, so I have some tangible idea when it starts in earnest. At least spending the time in research takes the mind away from my reality, so I plug on.
Take care.
Cheers

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