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@surftohealth88
Thanks for asking, Mrs. Surf. I started both RT and the patch last Wednesday. Definitely had some ups and downs (pressure in head, some nausea, stomach ache, fatigue). I couldn't tell if the cause was the RT or the patch, but after talking with my RO today, it's clear it's the patch. The good news is I biked 15 miles yesterday and felt good. Today, I jumped on my bike as soon as I got done with RT. I wasn't feeling good to start but after a few minutes of biking I felt a lot better (14 miles today). Personal testimony supporting the benefits of exercise 🙂
In other news I got a "second opinion" last Friday at MSK. The doctor didn't think there were enough long-term data to support the patch (he did support 2 years of Zytiga). However, today my RO pointed out that the PATCH trial (which showed similar performance between the patch and "regular" ADT) was based on the same data set as the STAMPEDE trial, which is one of the studies the MSK doctor relied on to support 2 years of Zytiga. My RO and I agreed many doctors are simply risk averse to trying new things 🙂
Finally, advice on prep for the RT each day: it will take some trial and error to get the bladder and rectum right for treatment. This is expected and there are times I had to get off the table and drink more water and return for treatment. Also, you can drink too much water. Once I had to get off the table and "tap the keg" (sorry for the teenage boy humor) and then return for treatment (told you I was an overachiever).
All the best to your husband and I hope the RT starts soon so you can get that behind you.
Replies to "@surftohealth88 Thanks for asking, Mrs. Surf. I started both RT and the patch last Wednesday. Definitely..."
@bikeman1 I only got kicked off the table once and that was for too full of a bladder. That was the first time I had radiation in the afternoon and I knew I was in trouble when I could barely hold it in the waiting room. My concern though was peeing myself not being over full.
Live and learn.
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@bikeman1
Thanks so much for the update 🤗 and for all of the additional tips and details : ))) ! It is good to know that "getting off the table" is not the end of the world, even though for us "overachievers" it may feel like it lol.
I agree with your RO, doctors are in general very slow to embrace new approaches for multiple reasons. Good that you found one that is more in line with your wishes and comfort level.
Regarding SA , I am sorry that you have some of them and for me personally nausea would be the worst : ((, I just hate that feeling and unfortunately I am easily nauseated 😵💫. My nervous system in that area is totally crazy - anything upsetting (bad smell, high heat, big waves, too many curves, bad news - I am nauseated lol !!! I HATE that feeling , and may the lord help a doctor who pushes that spatula even remotely past the half of my tongue lol - well, I guess everybody after me in that office do have much easier time with exams LMAO.
It is great to hear that your favorite sport is helping you with SAs : )))) - yeayyyyy !!! 👍 MULTIPLE benefits by doing something that you love to do : )) ! I am sure that after some time your body will adjust and that nausea and stomach ache will stop to bother you.
Keep us posted : ))) and may RT completely obliterate all of the cancer cells and ADT kick their naughty behinds out of all glands forever 🍀. We are in this treatment for a long haul but the word "long" sounds great to me ; ) in the grander scheme of thing ; ))) !
All the best always <3