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Profile picture for kerryfr @kerryfr

I'm also the wife of a wonderful man with Stage 4 HS metastatic PC on ADT, and just started Darolutimide yesterday. ADT dropped from 500 (!) to 150 in 3 weeks, but WBC and Ferritin are low. We will be starting chemo hopefully in August, only if my husband's WBC improves. It's all so terrifying. Our doctor looked us straight in the eye for our prognosis and said "five years is the median". I almost fainted. It's so hard to know what's next and navigate so much information and "what ifs". Looks like you're Canadian, too! We're in Winnipeg.

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Replies to "I'm also the wife of a wonderful man with Stage 4 HS metastatic PC on ADT,..."

@kerryfr
Median survival means various things. You said ADT dropped, but I know you meant PSA dropped.

In 2019 I became castrate resistant. Median survival was 2 years.

I was on Casodex and abiraterone the first 4 years, And my PSA was only undetectable one month.

I switched to Orgovyx for ADT and Darolutamide. Had a metastasis on my spine zapped 3 years ago. It’s now 2026 and I’ve been undetectable for more than 2 1/2 years. It could come back, but it’s been almost 7 years since my two year median survival date.

New drugs keep coming out and your husband may get the benefit of more than Darolutamide. Hopefully his PSA will drop down considerably from where it is now with Daro.

Prostate cancer is a chronic disease for most of us, Not a deadly disease.

@kerryfr
BC here 😁
Good luck with your husband’s treatment - I hope all goes well. It’s a stressful time for sure!