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PMR - What do you wish you had known . . .
Polymyalgia Rheumatica (PMR) | Last Active: 11 hours ago | Replies (72)Comment receiving replies
@tweetypie13 Thanks for this. It seems that when I cut down it was the PMR coming back (classic back of arm pain, heaviness in legs, etc.) But truly, I'm not sure if that's the cortisol issues too.
I guess that's my next question: How do you handle the reawakening of the adrenals? Is it just live with it for a bit? Or does the slow or alternating tapering help?
Replies to "@tweetypie13 Thanks for this. It seems that when I cut down it was the PMR coming..."
@grownupcf Fundamentally either your adrenal glands will wake up as you taper or at some point they will not. Slower tapering allows them a little extra time as well as protects you from tapering too much if there is a problem. Patience is the required skill. I have had to learn that I am not in charge of what my body does, when it does it and why. Whole new way for me to think about my body.
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@grownupcf I suggest you read the above from Dad….
“Stay on pred dose for the 3 months, then consider taper.”