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NET Stage 2 in Stomach

Neuroendocrine Tumors (NETs) | Last Active: 18 hours ago | Replies (12)

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I did but I thought they were worsening preexisting conditions. I already have IBS, GERD and a small hiatal hernia. So I went to my gastroenterologist and I had an endoscopy about 3 weeks ago and he found a polyp and biopsied it and we just got the results back two days ago. I have another endoscopy today to mark the spot where the polyp was so the surgeon can find it.

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Replies to "I did but I thought they were worsening preexisting conditions. I already have IBS, GERD and..."

@soonermimi Hi and welcome to Mayo Connect. Sorry to hear about your diagnosis. Is your gastroenterologist a NET specialist by chance? Other than the MRI and endoscopy, has any other blood work or tests been done? Thanks.

@soonermimi: If I were you I would get a referral for consultation regarding NET treatment - your local Oncoligist knows little to nothing about NET tumors, how they function nor the specific way to manage them. NET Specific Medical Oncoligusts can arrange a “tumor board” consultation where all NET specialists can compare/select best case scenario for your RARE cancer tumors… then you will have opportunity to choose what is best for you right now.
Neuroendocrine tumors behave differently than “stomach cancer” and there are many treatments that you have available,
Research through Mayo Connect, Lacnets, Carcinoid Tumor Research and others to gain knowledge to prepare you for best decisions.
Many of us NET patients can provide general care answers and most importantly have personal experience to help you.
My experience is: Don’t let a General Surgeon touch you. NET cancers need specialized procedure!