← Return to Long Covid has ruined my life and marriage

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@suecedar1028

I hope you get relief from your pain!

I've got bone on phone in my knees, too, one hip replacement, and the other one not that great.

I also have post-herpetic neuralgia from previously uncontrolled reactivations of internal shingles (ZSH). I also have osteoarthritis in multiple joints.

I saw on your profile that you were having neuropathy in your feet. I went through a time where I had something like that. I couldn't bear weight on my feet. It felt like I was walking on sharp rocks. When my doctor ran a pin-like tool across the bottom of my feet, I couldn't even feel it. We never got it figured out, but it finally went away. I did not have plantar fasciitis! Did you experience something like this?

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Replies to "@suecedar1028 I hope you get relief from your pain! I've got bone on phone in my..."

@drbf I also have bone on bone in both knees and severe neuropathy. I've currently started back with another round of IVIG reatments for CIDP (Chronic Inflammatory Demylitating Polyneuopathy,) but it's to early to say whether I will see any kind of improvement.
THe most difficult part for me is that I was very healthy pre-covid and vaccines. I was an advanced yoga student and a daily walker for 20 + years. I recognize that being angry about this is not helping me, but it's so difficult not to find myself in a place of even remotely, acceptance.

It sounds like you were given EMG testing. When that little prickly rod is rolled on my feet, (not sure what that tool is called...lol) I too feel nothing. I have also been diagnoised with small fiber neuropathy and peripheral neuropathy all of which I hadnt a clue about before covid! Now it's absoultely screaming at me! Argh