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DiscussionLiving with Neuropathy - Welcome to the group
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Replies to "@tessie63 Hi, Sadly, I have been advised not to use the seeds as the stomach is..."
It sounds like I have the same issue or similar to yours. Food is sitting in my stomache for days and then for me its terrible constipation cause it has been sitting there (I noticed you mentioned you dont have constipation). Have doctors mentioned anything at all for help? I cant find any. I went to see a gastroenterologist and he saw me for 15 mins and said it was just anxiety. The neuro I was seeing told me possible autonomic involvement and that was it. On top of that my feet are getting worse each day and now my arms are getting sore and weak. To be honest Im starting to reach my breaking point which I let my doctor know. I’m literally watching muscle melt. The neurologist told me not to worry about it, its just neuropathy, go and live your life. Since there is no help Im starting to see the writing on the wall. I weigh 160 pounds now due to neuropathy - I wasnt trying to lose weight. I was 225 when this started late 2024. Sorry for these posts but I dont really have anyone to talk to so I apologize.
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@cheyne I’m so sorry to hear this is happening to you. I have never heard of this condition and it must be frightening to realize there seems to be nothing you can do to stop its progression. Stay strong and keep the faith that perhaps a doctor will come into your life that can figure out how to help you with this. I’m sending you hugs and well wishes.