← Return to PMR - What do you wish you had known . . .

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@grownupcf ….Ok, breathe, and wait. Kevzara can take up to 3 months to kick in. I was at abt 8-10 mg of prednisone when I started Kevzara. I was able to taper off prednisone totally by 3 months after starting the Kevzara.
I have no other health issues to deal with.
I’m sorry, if the following is a repeat, I don’t recall your history.
Have you passed thru the cortisol stage? That will have a slowing effect on your tapering. Is it PMR or cortisol issues? Here’s a bit from AI
“ Tapering Challenges: When patients undergo long-term steroid treatment, natural cortisol production can slow down or temporarily stop. As the steroid dosage is lowered, the body must adjust, leading to symptoms that can feel like a PMR relapse.”
As for tapering….. my drs advice was not to drop more than 10% at a time….stay at that dose until pain free for at minimum 2 weeks before tapering again .
As I got lower it was harder to taper (sometimes only .5 taper) and I stayed at steady pace until I was truly pain free.
Kevzara did help me, but getting there is still a journey.
Rushing won’t help PMR leave your body, our ultimate goal.
As for Kevzara, their website is pretty good with info.
Keep asking questions……we all learn.

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Replies to "@grownupcf ….Ok, breathe, and wait. Kevzara can take up to 3 months to kick in. I..."

@tweetypie13 Question for those on Kevzara. Who brought up the subject on taking it first, you or your doctor? Was it due to tapering issues or other health complications requiring you to get off prednisone? Just curious. Thanks.

@tweetypie13 Thanks for this. It seems that when I cut down it was the PMR coming back (classic back of arm pain, heaviness in legs, etc.) But truly, I'm not sure if that's the cortisol issues too.
I guess that's my next question: How do you handle the reawakening of the adrenals? Is it just live with it for a bit? Or does the slow or alternating tapering help?